This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
Oh, and the mouse/rat is supposed to stay alive, but in my case, it fell asleep, then woke up and had a tiny panic attack, and died of heart failure. (I suppose if I woke up in a coffin, I'd have a panic attack too, but it wouldn't be tiny.)
When I was a kid the workers in the fields would tie string round the bottoms of their trousers when they were cutting corn (the English variety) so the rats did not run up their trouser legs. The rabites they simply shot for dinner. It was war time after all.
1. If the rat is not smart and gets caught, you will hear all night it's squeal of pain and panic. All night. You feel soooo bad because that squealing just pulls the heartstrings.... Then morning arrives and you suddenly realize you don't know what to do with it... How do you move it from the kitchen to outside the house??? Call the male next door neighbor, that's what you do. Hope you're in talking terms...
2. If the captured rat has a smarter sibling, that ingenious rat knows how to get out of the released trap. It now avoids that route. And the trap is avoided at all cost by smarty rat.
a) so you decide to move the trap to another wall. The next morning, the rat dragged the tarp over the trap. (Really, it did!)
b) since rat is smarter than me, I called nephew for help. He comes over with this rectangle cage, attach meat inside. When the rat enters and pulls the meat, the cage door closes. (I eyed the cage and had real doubts it would work. It worked.
I like the suggestion about calling the exterminator. Expensive but ....
Love you Book, hugs
Jlm, I'm sorry that you're in this situation. I cried when I knew my Christian duty. For a while, my religion and my closeness with God protected me from responding back to my very negative, controlling father. The constant dripping from negative dad slowly eroded my armor of the fruitage of the spirit. I recall going into depression because I was getting unChristianlike thoughts. I'm glad my dad wasn't anti religious..just anti my religion. Funny don't you think? It was due to my new religion that I stayed to help him.... Truly, as long as your mother is not declared incompetent and a danger to herself, there's nothing you can do... How can you stop her? I'm so sorry...
Do you know what my fave niece said today? I told her a story about a woman calling the police because there was a confused elderly woman in her yard. The police went house to house knocking on doors to find her home. They found the house and the family didn't even know that their mother had wandered out....Niece said that she's glad that grandpa is bedridden. Because he's becoming confused and wants to go home, and with his anger and violence, we would have had a difficult time with him...
So jlm, I get where you're coming from. I think you need to call someone who knows the ropes about elderly people. What you can do and cannot do. Our local govt has a division for the elderly. Maybe you can visit them, talk to someone and pick up some pamphlets. They'll help you if you ask, like my dad did when mom was diagnosed with dementia. I'm sorry I don't have much advice to help you. Cyber hug? {{{{{HUGS}}}}
Moved all her furniture to Independent living.
Chronic complainer, talks non stop, Hyper critical, etc.
I left to join navy at 18, never went back..
Now 40 years later, it's like it was yesterday.
Really anti religious .. And I became a Christian 20 years ago.
Now is threatening to fly back to her empty condo, and is packing her bags..
Can hardly walk many days..
Been almost 3 months and I'm worn out.
Dear book ...
Why would any caregiver want to make this a battle of "who has it worse"...? We're here to support each other. If you're not here for that, kindly see your way out. I'm here to support all of you in your individual situations. Mine is not same as yours, duh, yours is not same as mine.
When I had a major blowup at my dad this past April, I PM'd book and only book about it. I knew she would at least not judge me, and I needed to tell someone who might understand. I treasure you here on AC, book, and I'm sure I'm not the only one. Like I said, sorry that you felt you even owed it to another poster to defend yourself. Big (((((hugs)))))
It's when posters like you think you're the only one who has it hard. I didn't have a life. It was work and caregiving.... Mom's last 14 years was bedridden with trache, stomach tube, 24/7 oxygen, completely vegetative state...still just me and dad. Dad had the day shifts, I took over after work. Mom needed constant suctioning every 19-15 minutes or else she choked on her phlegm, saliva. Dad was knocked out by 7pm. He doesn't change her pampers. I came home during my 1 hour lunch to change it. Nights, I changed it by myself. Mom was dead weight and automatically kept trying to go on her back, so I stacked lots of pillows on and behind her to keep her on her sides as I cleaned her.
Dad, mom's full time caregiver, finally had a stroke 4 years ago. I now had 2 bedridden parents. Not One of my 7 siblings offered to help. It's Not Their Problem....D*mn family invite me to parties or dinner but didn't think I would need someone to cover both bedridden parents. Worked full time job because I'm Not Independently Wealthy. Our food pantry is basically empty most of the time. I dread when we get guests because I have to offer my meager food which is a Cup-o-noodle. I had to pay oldest sibling to help me with both bedridden parents in the form of Babysitting which did not include changing their pampers......
I started blacking out, suicidal. Therapist asked me to tell my sibs about my suicidal, need their help with the parents. I resisted telling the therapist they didn't help the past 20-some years,... I asked. No response....
Mom finally died. Pressure cooker released a few pressures. I finally went on a 2 week vacation last year. I had a free ticket for this year. My family thought it was easier to cover for me last year since mom is not here and it's only dad. Ha! This year no one wanted to cover for me. Instead of giving my free ticket to family, l gave it to my boss- that's worth up to $2400.00.
I'm sooooo tired. I spent half my life caregiving parents. My religious leader asked me on one of his recent visits if I regretted finding God. I said No. I regretted learning what the Bible said....
Dad's becoming angry and violent. I'm getting childhood flashbacks and even violent mom flashbacks. I'm still hanging on trying to keep everything together and not break into pieces. Oh, d*mn, tears.. I've suspected I'm going thru depression- no appetite, waking up so exhausted....
I'm sorry. I'm too exhausted to respond to other posts here.. I'm in too much pain to think. Writing above gave my headache a boost up in the pain department. Thanks everyone. I do read on a few threads but rarely comment.
I know how to cook, but its not damn fun for the picky eatersvin my home, so hubby does most of the cooking these days. When my sister was here for those 3 days, we had a great time, cooking and eating, watched a few movies, as she loves that, and we got out to go to the Casino for 3 hours, and No, I didn't Win, darnit!
Sister moved on to spend a couple of nights at her daughter's house, as the RAT situation is still in affect at her house. Her husband is So Lazy! I know that if I left our house over a Rat issue, my husband would turn this house upside down, figuring it out! I spoke with her hubby today, and he said that he could hear a rat underneath their stove, scratching about and it sounded like Freddy Kruger down there, but "it couldn't find its way out"! I said to him, why don't you just take the bottom plate/grill off from below the oven and trap it, but all he had was excuses about how bad his back hurt! Really? He's an A**! So, she will probably be back at my house in the next few days, as definitely won't go home until its fixed, and the Rat is gone, but how is he going to prove that, I'll never know! He'll probably just lie to her, and then she will FREAK OUT when she hears something! Lol! OMG, the drama continues!
Anyways, I hope all is going well with you and your family! That's my story and I'm sticking to it! Lol!
Hi all, hope you are All doing great!
Even if someone is bed-bound, a caregiver can get out. I mean, what would they do? Sit on the bed all day and watch someone sleep? That sounded flippant, but it was meant sincerely.
A vacation would be nice, but that would mean someone would have to come into the house -- a definite no-no for my mother. Book is not in the same position, since she is not alone caring for her father.
When a parent is not declared incompetent, there's really nothing much you can do for them unless they want to. My dad had pneumonia and refused to go to the clinic/ER. He got so bad, I called and begged 911 to send an ambulance. They came. He refused. They left - his right to not go to the hospital. I called Adult Protective Service - they told me that it is his right not to go to the hospital. I went to an elder law attorney and was told the same thing. My hands were tied - even though I knew he was in a really bad shape healthwise. Dad finally gave him when he couldn't breathe (left lung was almost filled with fluid.)
It would have been so nice if she just found new friends in her new home. Too bad she didn't.
I know what you mean about how the memories of your childhood tends to creep up suddenly. Sometimes I wonder what the heck I'm doing here - my parents weren't exactly... anyway, lately as he now enters the anger stage, my childhood memories tend to pop up lately when he gets angry at me. I have all the reactions of what I had gone through as a child - the frozen in place, staring at him with fear into his angry scary eyes, heart beating so fast - and definitely not wanting to go near him because he might punch me... I sometimes find myself responding angrily to clients at work. So hard to keep your home life and your work life separately. Whatever you do - do not let it affect your work. Work is a lifesaver from 'them' the parents.
Is there a way to see someone in the elderly community that can give you pointers to get your mother to like her new home? A senior citizen club (we have here the dancers who love to go to the night market and dance the cha-cha), etc... If she can just find a friend worth staying there. I don't know.... You take care.
So sorry, Jim, for what you're going through.
I just want to say - about your "wished the end for her" - we do that because we're being hurt by someone. If they passed, then we think we could stop worrying, get more peace of mind, not be in such a panic over our Loved Ones. Re-experiencing some of the trauma and bad feelings from childhood is common, I think. I've felt it. Just talked to a girlfriend on the phone last night who just this past week started helping care for her father who's had a stroke, and she calls me up in full anxiety attack mode. She's seeking closure on old hurts, that's WHY she wants to care for her father. I personally feel like she has a better chance of experiencing new hurt, or reliving the old ones, than getting closure...
So there are a lot of deep emotions/feelings tied in to some people's caregiving experience.
Mom surely has a primary doctor in KY. Does doc know that mom is trying to go back to FL? What does Doc say about it? Your mom may listen to Doc tell her to stay put, that she can't return. Does it seem to you that her wanting to up and move back is more agitation and dissatisfaction with her life in KY, or does she genuinely want to return to Florida and independence? If mom is having agitation, then it might be time for a behavioral/psych assessment for her.
You need to do something to help for your depression, right? There are options you can try that don't involve meds. There may be a support group in your area, there is talk therapy (and that would help with the recurring bad feelings from childhood), and there's this wonderful website you've found. Keep posting. :-)
Moved my 92 year old mother from Ft. Lauderdale to Lexington Ky . After 2 major falls, and 2 months in rehab. Lives in nice Independent Living in Lexington now. Very tough minded, independent. Now demands to go back to her empty condo. Can i prevent her? Calling airlines etc.... She probably could pass a dimentia test, and appear lucid.
I am just in a real depression, and have lost my joy in life. Have a high end tech job that requires extensive focus, and that is really difficult.
I've even wished for the end for her... She just sucks the life out of me and alot of stuff from teenage years all come back now....