Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
If there were a financial issue, then I can see the kids chipping in for the cost of a place for mom...But it sounds like your mother is $$ okay and can afford this luxury. Don't dump guilt on your your halo. You are a wonderful daughter to a not so wonderful mother. And, forwarning, don't go over there frequently as she will become accustomed to just your company rather than mixing in with the others living at the resort. Once a week is enough. Let's hope she has a nice personality and will make friends.
My point is I don't know anyone (except my neighbor) that has in-laws living with their family. (and my new neighbor is already unhappy with her daughter and SIL).
Most importantly Sharynmarie is for you to feel alright about this move to the resort and stop feeling that you need to justify or explain away your feelings of guilt. Phooey...
My thought is to avoid people, places or things that make me feel bad about myself, guilty of the damned if I do and damned if I don't situations, and/or makes me sick to my stomach.
Remember, you can't make someone love you and you certainly can't make someone happy if they are bound and determined to be miserable.
As Easter is about Redemption let your wrongs be forgiven and those who have wronged you, too.
one more "daughter's like me" who think I am just fine and dandy!
Bonnie
Thanks for explaining about your mom's family. I do understand, when you've described them as being, "remote." At first I just thought originally you meant as they lived far from you, which I know they do. But do you mean they really don't initiate the contact with your mom's side of the family over the years?
Oh, this friend who relieved the wife that day for my husband's sick friend is a wonderful friend also.
I couldn't help but laugh at your description of your mom barricading herself!
So the accusations are in gear? This is interesting, because we have not experienced this kind of behavior with mom. But this also goes to show you how individual each case of Alz/Dementia manifests.
The Assisted Living resort sounds like quite nice. I'm very happy that you have found it, and that she can take her poodle with her. This is a big plus!
Well Sharynmarie, I wish you the very best as to how you will be dealing in telling your mother about the Assisted Living. From many postings I've read, I find that having the programs they offer, to stimulate someone w/Alz/Dementia is very important. I say this, because I see as in our case, the fact that my sister didn't seek this avenue out earlier w/mother has unfortunately impacted her ability to still connect someway. Of course, the situation as you remember was very tense, while the narcissistic aunt was still alive. But needless to say, I many times think that I wish something along those lines would have been done, and mom could have been going to at least an Adult Day Care, instead of just sitting in front of the TV, all the time. The caregivers do a good job, but I'm afraid they do nothing to stimulate her. So I personally do see the benefit in these programs for elders.
O.K., Sharynmarie, you and yours are in my thoughts!
Have a wonderful Easter Day! Much Love & Stay Strong! Margeaux
I'm just saying I find it intersting that so many of the folks on this thread have faced unfair financial accusations.
Reminds me of the divorced person who kept telling me ...I used to have...."
When my MIL was ready for a resort like retirement/asst. living place after her husband died, she choose a two bedroom unit, which cost more but it was what she wanted and what was available. She really enjoyed the place and said she should have moved years before. My husband is the eldest of 6 children and again, he is the only one that lives out of state, like me. His mom chose what furniture she wanted to move and flat out said she wanted a new sofa/couch to fit the new apartment! She had "the boys" move her stuff while she was off having her hair done at the "new" place. I just hope your mom, Sharynmarie, has a good attitude on her move. If the "resort" has assigned table seating, that worked well for my MIL. The tables were set up in 4's and great effort was made to find good table companions. Those who needed mechanical movement vehicles were aided by staff and then the vehicles were put out of sight in a closet as some folks did not the idea of seeing all these folks in wheelchairs. Interesting!
so I hope your Mom gets a good attitude and enjoys her stay with the resort.
Happy Easter! Bonnie
Welcome to the thread. As Sharynmarie has suggested to you, try to seek out an elder attorney. She's right that you do need first and foremost of all to get legal control over your mother. By doing this you and your brother would be able to start to put in place necessary living conditions for her welfare.
This must be very stressful for you and your children. It is great, that you and your brother are working together in this. Please keep us updated.
Much Love & Light! Margeaux
Gosh, this must be really hard on you. Either putting your mom in a "home" or keeping her with you...tough to deal with either way.
In reading what folks on this thread go through taking care of someone...I am in awe of each one that has such a tough situation. At a Senior Living class I took last month, the fact that caregivers die at home more than the needy person due to caregiver burn out and stress. So be kind to yourself.xxoo Bonnie
Bonnie - so sorry about your mom and the hip surgery. I hope it works out well. If your mom is able to do rehab and bounce back to her normal every day life, you're good. I hope she doesn't follow my father's footstep - refuse rehab - and is now bedridden. Unfortunately, he absolutely refuses to get off the bed - at all - not even on the wheelchair, not even to attend his own wife's funeral this coming Wednesday.
Sharyn, sorry, I gave a short laugh when I read that your mom is barracading herself. Sounded just like our mom when she was on the accusation stage. Except she didn't barracade herself. She attacked us and WE barracaded ourselves in our bedroom. =) ... FYI, prescribed meds are trial and error here. You can do a search on the top right of the meds your mom is prescribed and see how other caregiver's charges reacted to it.
I am so glad your husband got to talk to his friend on the phone. That was really a great thing the other friend did for your husband and the man who is ill.
I just got back from my dr for blood work results (mom's and hubbys dr. too). Everthing is good but blood sugar is still a tad high which he said makes me pre-diabetic. I have to get another test in June. I have had a sinus thing going and off since last week, thought it was a sinus infection but dr. told me it is allergies. We talked about mom, he said hubby told him yesterday that mom was incapacitate. He said it will make things easier for me once we get things in place for her. I told him how mom doesn't want to take the antidepressant anymore, saying she is having side effects like she always says with all prescription medicine. I asked if I could get it in liquid form, he said no, but I can crush it up. He also said that it will not hurt mom if I give her the Namenda 6-7 hours apart instead of 12. I still think I will wait on giving that to her simply because it is going to stress me too much getting up in the morning before going to work to give it to her. I am usually up til 1-2am before going to bed and sleep until 9 sometimes 10am. I get home from work btwn 9:30-10pm. I never sleep all the way through the night which adds to me sleeping later in the mornings. Without sounding selfish of my time, I don't want to add more stress to the mix and end up skipping dosages.
Mom is slowly barricading herself into the master bedroom. Ever since hubby took her ladder, she has been targeting him, accusing him of stealing everything she hides. Today she told me he took plant food, laundry soap, and several other things. Most of these things end up being found in the master bedroom. She locked the doors to the other 2 bedrooms the other day. Her house was built in the early 60's so the doorknobs have a small hole for the key to fit into but requires a flat tip to fit in the slot inside the doorknob. I had to remove the doorknobs so we could get in. I told her if she did this again, I would permanently remove the knobs. Of course she claims she didn't do it, my hubby did. Needless to say, my patients with her has been very close to the end. I know she can't help it, but when she started accusing my husband, it brought out my mother bear instinct, Lol!!
I wish everyone a Happy Easter, Happy Rebirth, and Happy Spring!! Hang in there, even if you are only hanging from a thread...this may be the thread to pull you through!! Hugs
I just want to send out a "Hello," your way! I have been thinking about you, and I hope all is well. Miss you, Much Love & LIght! Margeaux
I am really sorry to hear about your mom's broken hip.
From the descriptions about her life, it does sound as if she has a wonderful life.
Even how you have described your family, it's quite a contrast to many others on this thread who come from very dysfunctional ones, and for this I am very happy for you. You will all work together to make sure that your mom remains in good hands, and continues to be taken care of. . You and yours are in my thoughts,
Much Love & Light! Margeaux
You are right. My husband is quite a guy in this area. I know he is grieving.
I also think that with the recent passing of Vanilla, the cat, which w/be two mos., ago on the 4th of April, that the whole subject of passing is right here. I know he misses Vanilla, but of course being a guy doesn't show it as much. I on the other hand, do have my crying moments about it. Well, he did at least talk w/this friend over the phone, when one of the other friends was there relieving the wife for a bit. They hadn't talked even on the phone for quite some time. This I know, some what pacified my husband.
Your poor mom, with the situation about her sister. I'm sure she must have missed this communication once her sister was placed in the nursing home. Well on this point, I hope that your other relative will send her a card every now and then.
So, it appears by the changing of the guard at your deli, that not even a boss can be so smug in their position? Well you've probably heard, that for every action, there's a reaction. Well I hope that your next boss is fair, and that it won't be so taxing on you to get accustomed to. Much Love & Light! Maargeaux
My mother and her sister were in constant contact until my aunt was placed in a nh. Then it was basically my mom sending her cards,etc. She was probably in the nh about 2 years when she refused to eat/could not swallow so the family had a feeding tube put in. My mom is very much against a feeding tube in cases like her sister's so it really broke my mom's heart when they did it. Back in 1997 or so, my mom received a call from a social worker in PA. Her brother's wife had been discovered deceased in their house by a neighbor and my uncle had Alz was incapacitated. My mother was his only relative that could make decisions for him. He also was placed in a nh and they kept my mother informed of his condition until he passed away. As far as my cousin is concerned, I will send her the address to the memory care unit when mom is placed and it will be up her if she wants to send mom cards.
Yes, I remember the latch key kids as I was one of them starting at age 12. I loved coming home to a quite house with no siblings there telling me what to do, Lol!! I had to call my mom everyday when I got home and I was not allowed to leave.
My bakery/deli boss is being transferred to the store in Stockton I worked at before coming here. Saturday is her last day. I was just getting to understand how she works too, now to start over with another boss. The district supervisor has been making things very hard for our current boss, I think in hopes of forcing her to step down because they wanted to have separate managers for bakery and deli. Since my boss wouldn't step down, they have transferred her. They did the same thing to the bakery/deli boss I had in Tracy. Our district supervisor is a real menace. She would come to our store when our b/d was on vacation and just pick everything apart that she could find wrong, change the schedule by cutting hours. Last week when "S" came back from vacation, she was so pissed because of all the hours that were cut she accused the store manager and the district supervisor of setting her up to fail (that is what I was told by others who were there at the time). Who knows what will happen with a new manager. I do know they usually come in with a very strict attitude in order to set their authority in place so the next month may be very stressful until she feels she has made her mark. Some of us may get transferred too.
Have a good day and hugs to you!!
I totally agree with you about people in this condition not wanting to see anyone.
When dad was in and out of the hospital. he had his share of visitors. My parents were the kind of people, who always wanted to keep face with friends and relatives. At first dad would keep a happy face and all of that, but I know later on it became too hard. I suggested to both my sister and mom, to try to discourage some of the relatives from going to the hospital. Of course this fell on deaf ears. It was interesting too, because some of these relatives really didn't come to visit them, while they were healthier.
I also think that many times for just privacy reasons you just can't let everyone come.
I had to explain what a person goes through mos. ago to my husband, about getting sick right after treatments, immune system being a reck, and the patient can catch anything visitors bring with them. So there's more to all of this, I'm sure.
Thank you for the suggestions about keeping in touch. He does email him, but of course for a time now, there's no reply. But as I've told him, that's the important thing right now.
By the way, how are you doing? I was getting ready to write a note to you, as I know you haven't posted for over a week. I hope all is going well with your family.
You've been in my thoughts and remain. Much Love & Light! Margeaux
If I had cancer and was going thru chemo, etc...and was throwing up all the time and miserable, I would not want any visitors - only family. Cancer is a very personal thing. You're at your lowest level of health....skinny and losing hair and fighting the fear of a slow painful death. Maybe your husband's friend may not want those he's closest to - to see him looking at his weakest. It's hard to say....Have your husband tried the personal touch route? Buy a card that is blank inside, and write his thoughts to his friend. Be personal. Include with the card his friend's favorite sweets, etc.... A small get-well-gift. Keep doing this every few weeks to remind his friend that he is being thought of...and it shows that your husband is sincere in his wanting to visit. But remember, his friend also must have his dignity. My 10 year old niece, close to her final chemo, was sooo skinny. She was skeletal and seeing her walk looked awful. Like a small wind can blow her down. She was eating like a bird - anything she ate/drank (and not even when consuming) - she was throwing up. If your husband's friend looks like my niece, I can see why he wouldn't have people visit him. I will always remember my deceased niece as being so skeletal - not the beautiful child she WAS.
My husband belongs to a society, he's been a part of for many years. So he's had this friend in particular he's known I think over 25 yrs. or so. Since he has become very ill with cancer, we have seen less and less of him. Now that he is doing Hospice in his home, I guess he just doesn't want to see many people anymore.
So here is the issue. My husband tried to see him mos., ago and called his wife to see whether this was possible. She said, "No." I could tell at the time, that my husband didn't like this, because she did allow her sick husband to see about 5 other people, 2 of whom also have been part of this society. So I do know my husband, and I'm sure he was feeling the pecking order, w/in the friendship.
On top of this, he was feeling this relayed to him, by his sick friend's wife. She's never been the communicative type, she's very private!
Anyway, I had to explain to my husband in this, that it must be VERY hard what his wife is experiencing, going through all of this with her husband's illness.
He's gone the route, Chemo, and heard he's taking about 18 pillls p/day right now.
The last few days, my husband made one more attempt to see if he could visit his friend one last time, but the wife now told my husband that she is now being the voice of her husband. As painful as I know this is for my husband on different levels, I reminded him, that if these are his friend's wishes, we have to respect them, even if my husband feels I'm sure closer than some of the people who've been allowed to go visit him the last month. I feel too, on an ego level this really hit my husband. But oh well!! I do feel for my husband, believe me, because this is an inner circle friend. Margeaux
I offer my condolences for the passing of your friend. Your idea about creating a memorial place for her is very nice. I realize you've stated the husband is a jerk, and it sounds like the consensus between her friends is the same. Really sorry about this part. May her spirit soar very high! Much Love & Light! Margeaux
My mother used to say to my sister and me, "when I get older, just put me in a nursing home, I don't want to be a burden." Honestly, on account of some of the abuse doled out by her, I know I, (in my mind) used to think, "that's where you belong." Of course I felt this way too, since she was the kind of narcissist that did the neglect, and treating my sister and me as if we were Cinderellas, and babysitters. I don't think she ever uttered any of this to my brothers.
Well things have changed since the 50's, haven't they? Society was quite different then. I believe that in many families, there was still a sense of community within family's. I also believe that there were more available women at home to do this job. This has changed though. I know this is what what my siblings and myself experienced. We became the "latch key," kids. Remember that? For those of your not familiar, parents would hide the key under the doormat, so their kids could get inside the home, while parents were still at work.
Anyway, I know for a fact that our mother would make this comment about placing her in a nursing home, to start the ingrained guilt trip. But by then I was a teenager, and really had become aware of her games. At that time I also thought, "how ridiculous is that?" I felt as if my mom was wishing something, or other she really didn't desire. Point being, I saw right through this manipulative statement.
It sounds as if your mother has been out of touch for quite some time, especially with her sister. Well, what can be said about trying to keep in contact w/people, family you do not really know. I have cousins like this. The only time I see them now, is at funerals. I'm not really close to most of them, except one. The one I am close to though, I had a real relationship with, throughout the years. The others, I can't say the same, and it wasn't their fault. It's just that as the years passed, my uncles didn't come to visit dad as much. Dad did the same. So that meant that we didn't maintain any bonds with some of our cousins.
My sister has gone through some of this weighing out whether to contact one of mom's old friends, etc. But several times when my sister says she's either put mom in touch with her old friend on the phone, mom has hardly anything to say to the friend either. This is AlZ.
For as much as some people like to say, let's stay in touch via emails, after awhile they don't. This used to happen also back in the day, when people used to also say they'd write to you, and maybe at first they did. But as time passes, people get very distracted and have their own things going on.
O.K., Sharynmarie, hope I've sparked some ideas for you. My feeling is, try not to give the lack of communication from this daughter of the niece too much energy. You're probably going to need this, for other things going on about your mother.
It is a time of adjustment for you right now. You're in my thoughts!
Much Love & Light! Margeaux
As far as my manager goes...I just think women as managers still have a lot to learn yet in these positions. I may be wrong and I will fess up to that if any one has anything to point out to me. I support women in these positions, dont get me wrong on this issue. I just think they tend to let their personal feelings on some issues get in the way where men have decades of experience and woman are not always as willing to share their experiences on the job because they have had learn without mentors. It's just my opinion so please feel free to correct me.
I was off Wednesday-Friday and didn't accomplish much because I was totally exhausted...my back hurt from putting mom's blinds...aching...preventing me from sleeping. The acid reflux was bad which mimics a sore throat and sinus issues. Well, I now know I have either a throat infection or bronchitis without a sinus infection. If I am coughing as much as I have today, I will call off tomorrow...just don't think it is good to be coughing a lot at work when I work with food.
My son called me earlier, he and dil are sick with bad colds too. He said he has an $80 credit at the book exchange here in town for said I could use it. The Book Exchange is a book store where you can take in your used books to get credit for other used books you want to purchase. I told him they would probably want his approval before they would allow it. I will check it out this next week after I feel better. Enough rambling now..Hugs Margeaux and Thanks again!!