Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Yes, I hope my sis is loosening up with the communication about mother.
My sister is very secretive by nature, it's part of her astrology too. Ay yay yay!!
Thanks for the explanation about the TSP. Funny, because I just had a conversation with some people last night about wallpaper. I wallpapered at my parent's home many years ago. I couldn't even imagine doing this now.
Oh, about the smoking, don't worry, I'm not one to judge people about this.
Actually it really makes me annoyed when others do this. I think if people would look out after their own habits, they'd rethink being so judgmental.
Hope all is well with you and your family Sharynmarie, Much Love & Light! Margeaux
The story you've told about your brother and the mess you had to deal with about paying your father's mortgage, and other expenses is pretty much the story in our family also.
I'm the eldest of four siblings. I have a sister and two brothers. My parents raised the elder of the brothers to be their "golden boy." He was named POA of our mom's Living Trust at the time of dad's death. Then mom had a sister (older than she) who was very included in our llves on account of an unhealthy relationship she and mother maintained all of their lives. Our aunt never had kids, and mom had her thinking that she was some kind of second mother to us. This in and of itself was a travesty, since she was a horrible narcissist. Anyway, her financial assets were also intermingled with mothers. My brother was POA of all of this.
Boy, did he ever try to wield his power about all of this through this appointment.
But he wasn't capable, nor responsible enough to take care of business.
When it came time to implement some of mother's and her sister's assets to hire caregivers, he did none of this. It wasn't until a 5 month stay at his home after both these two elders health issues became more serious and landed in the hospital that their releasing doctor's pressured my brother he either get some caregivers, or move them in with him. He being named MPOA, had to comply.
During that five month stint, mom and our aunt were quite neglected. My sister would go to pick them up sometimes on weekends, and bring them back to mother's home, (where they'd been living), and stay with them for the weekend.
I saw them during this time too, and my sister and I were very annoyed at how unclean they both looked. Mind you, that these two women have always taken lots of pride in their appearance. Mom has ALZ, and already had it then. So the sister, who was having heart issues, but still could fend in other ways, did.
Our aunt complained to my sister that they were not being fed properly. My brother put them in a den, where his four grown kids (all over ages 20), would go through to get to their bedrooms. So it was like mother and our aunt were living in grand central station. Oh, and our brother was quite angry during these 5 mos., about this arrangement. But my question to my sister at that time was,
"Why in China wouldn't he hire some caregivers?" Mother and our aunt had the resources for this. Anyway, he's always been this way. They pumped him up so much as a kid, but truth be told.....great disparity between the reality of it all.
Our aunt finally got fed up, and told my sister they wanted to go back to mom's home. This also meant, that our aunt who at the time was in charge of everything, revoked my brother's POA's, and reassigned them to my sister and youngest brother. I don't figure into this picture, but this is all an entire story unto itself.
After the reassignment, my sister moved into mother's home and got the ball rolling with paid caregivers. She works a full time job. But she and our other brother came to discover that "golden boy," hadn't paid taxes for several years, and had been charged penalties. He also went to a crooked attorney, who in the end was charging all kinds of fees, but not doing anything. In essence, my sister discovered lots of things undone, badly done. My aunt and mom own some apartments, which were in complete disrepair. There were four apts., that according to another tenant on that property had been vacant for over 6 mos.
But you see, while "golden boy," was supposedly in charge, the rest of us didn't know any of this. He kept it a big secret, about any and all dealings concerning the assets.
Of course, he estranged himself when all of this happened. His inflated ego was popped. Oh, and if you can imagine, he was angry of course w/my aunt. But he was also angry with the rest of us.
Believe me, this didn't feel good for the rest of the siblings. We've been raised to believe that one love your siblings no matter what. But, we'd had enough with our brother by now.
I think it takes a lot of courage to do what you did. Sure, it may feel uncomfortable for a time, but it sends the message to these people, no less a family member that you have boundaries. IMO, I can't think of even wanting to att end any of my family's kids birthdays, graduations, etc. if I have huge issues with them. I had a tough time even going to be with some of them this last Christmas for some of these reasons. Yes, and I agree there are the cultural attitudes that are at play. But, if I were bound by culture, I would have succumbed to the pressure from my mother that I have kids at a very young age, just so she could be a grandmother! This kind of thinking makes no sense to me.
It is too limiting. I really identified with your situation. Much Love & Light! Margeaux
Sigh... the guardianship thing you described. That's what I did with my brother (my sister was already clearly out of the picture)-- he wanted me to do BOTH the guardianship/conservatorship and the probate stuff, and promised that he'd "help" me. But I knew him well enough to know that he never would because he didn't want to do any of it at all. He kept telling me that it would be "easier" if I did both because I was there and he wasn't. But I wasn't going to let him off the hook so easily and wouldn't budge. So we ended up divvying up the responsibilitird and the lawyers came up with the arrangement of him handling conservatorship and me handling the probate of my dad's estate, and both of us sharing guardianship responsibilities. Actually, that was also greatly influenced by my mother's wishes. When we petitioned the courts for conservatorship/guardianship, the court sent a guardian-ad-litem to represent my mom and to, as much as possible, find out what SHE wanted, etc. She made it very clear that she did not want me to handle any of her affairs, that it was "none of her business" and that she wanted my brother to take care of everything and that she trusted him. It's a cultural thing-- the sons takes care of business, the daughters needed to stay out of all of it. I regret to this day doing that, because my brother SUCKS at these things, and it was clear by the way he lives his own life-- late payments, bounced checks, etc. Every single year since he was appointed, he has been MONTHS late with the conservatorship's report and the guardianship reports, delinquent in paying bills (including the assisted living bill-- mom was actually about to get evicted at one point!), etc. He has problems doing simple things like getting a signature notarized (it takes him weeks and so everyone is waiting on him-- I didn't get my appointment as family rep (for probate) for months because it took him that long to sign the documents for filing), keeping track of bank statements and other records, etc. He is a HUGE procrasinator. He procrasinates so long that often he completely forgets that he was supposed to do something in the first place and it takes several reminders before he finally has "the time" to deal with these things.
When we signed on as clients with the law firm that helped us get these things done, the plan was that they'd help us with the 1st annual reports so we could see how it was supposed to be done, and then we'd handle the rest in order to cut down on legal fees. But my brother can't manage it, so he's spent thousands and thousands of my mom's money on attorney fees for them to do paperwork and email him reminders and this and that, over and over again, only to not do what they instruct. For example, he moved our mom into a private-pay assisted living facility becasue it was a last minute move (he was threatened with adult protective services) and there weren't a lot of choices last minute, as we all know. Well, the attorneys told him then, over 2 years ago, that our mother did not have the resources to stay there, so he needed to immediately start looking for and then move mom into a facility that accepted Medicaid so that he could spend down her assets there. When she was out of funds and got on Medicaid, he wouldn't have to move her again. And he'd have worked and created some goodwill with the home so that in the months that it takes to get Medicaid approved, they would let her stay on with the anticipation of getting paid later. But he didn't listen. Spent down everything she had a private-pay place. And then everything just went to hell and mom is the one who suffered. So, what was supposed to only cost an estimated $2-5K in attorney fees has, to date, ballooned into over $20K and it appears that he will continue to use them to help with the annual reports that he needs to file.
I'm a librarian. I'm a lot more organized. In fact, when my dad died, I got a lot of things done, lists created, and some of the paperwork filed. The things my brother was supposed to take over didn't get done, so a year or more later, the attorneys are charing him $175-350 an hour (depeding on whether or not the main attorney does the work or the paralegal does the work) to refile everything. On my brother's procrasinator's timeschedule.....
I dunno. I think while I would have been very resentful and a lot more bitter than I am now, I should have just done it all in the first place. But you know, even my dad expected my brother to take care of things. He just wanted me and my sister to move back home to take care of my mom, and that my brother would do the "man's" work. I mean, I get it-- the desire to stay home and the expectation--right or wrong--for your children to take care of you until you die, but geez....
Anyway, not saying that that's how it will play out with you and your siblings, and I definitely understand where you are coming from and how you are feeling, so absolutely no judgement here. Just, hang in there and know that your parents are so blessed to have at least ONE of their children *actively* concerned about their welfare.
My sister, who lives in the same city as me and mom, refused to help out in any way whatsoever because it was "too stressful" for her. She wouldn't even VISIT so I could just take a break. She is very manipulative and self-centered, AND she's got her own mental problems (but seems to use it at her convenience to get out of things). Both siblings have always been this way, but this time I just simply decided enough was enough and the only change that could be made was me walking away. I miss them sometimes, but I realize that what I miss is who they USED to be when we were younger, but not who they are today. If they weren't family, I would have not given a second thought to writing them off. I don't let people treat me like that, so I thought it was odd that I was allowing my own family to treat me like that. So, some growing up on my part...
Ugh, I don't even like talking about them anymore. I'm just DONE.
I found this site at a time when I became very seriously suicidal. I had assumed that now that I am caregiving 2 bedridden parents, that my siblings would step in to help. NOT!!! This was the advice given to me. I fought against it. I mean, oldest bro was Given the land next door. He built his house on one end, and a 2 story 4home apartment. He, his wife, 3 grown children with Their spouses - all live next door. And they don't help at all. By the time I found this site, I was sooo angry and bitter and resentful. I only did 1 yr of caregiving both bedridden parents when I realized that this can go on for another 15years! I wanted out. Family told me that I cannot just pack up and leave. I would be arrested for elderly abuse. So, what was left? I will kill myself. If that was the only way out of this prison, I will do it. But there was a part of me who didn't want to die, the part of me who withstood all that I faced as a childhood (but prayed to God on why He made me born.)
I know what you're going thru. They have the nerve to come to me and complain about their lives, and ask ME for money. They both work for the govt and make soooo much more money than me. Just recently, they asked me if I can buy their $2600some ticket so brother can travel with SIL in April!!! The nerve...except I can't completely disinherit them from my life.
Have to go...time to start my morning.
Margeaux - glad that your sister shared with you about your mom and the doctor's visit.
TSP is a chemical powder to mix with water. We always used it especially in the kitchen to wash the walls before painting. It removes any grease residue and glue from wallpaper. It is very strong and can harm your skin so you need to wear gloves when using it. It works great on the walls, I haven't used it many years though. I was very surprised my mom had this. She must have gotten it out of the shed.
Exercise is something I have a hard time fitting in because of my work schedule, though I would go out hiking around taking pics before mom got so bad. Thursday I have appt. for a bio-metric evaluation required by our new union contract for insurance. It measures cholesterol, blood sugar, blood pressure and nicotine. Don't hate me because I smoke, but I am concerned they may reject me based on that. I know I have to quit, but I hate being forced to, I would rather do it on my own terms so who knows what will come of this. Gotta go check on mom. Have a good day and hugs to you!!
Yes, the calcium and magnesium are very important for the bones.
Let's not forget exercise also. It's the resistance motion that the bones seem to like, and keep them from becoming in a weakened condition.
I am so happy for you that your sister became concerned enough to get this appointment, given that this doctor wasn't going to see your mother until April, and the motivation was that your mom's safety is on the line. What is TSP used for?
I spoke with my sister on the weekend. She took mom for a check up the other day. She claims that the doctor, who is a woman, is very nice. She asked mother, what she does to keep busy. My mother responded that she does the dishes, sweeps and mops the floors. Well, the truth is, mom can't do any of this any more. So my sister says, she couldn't help but chuckle a bit. My mother noticed my sister chuckling, and said, "Are you trying to make a liar out of me?" So we had a good laugh about this comment. It's funny on the face of it, and it is SO, our mother. She's always been quite frank, and funny. My sister says that the doctor stayed focused, but also found mom's remark amusing. The doctor also told my sister that mom, given her age is in good shape. Anyway, I was happy that my sister shared this w/me. Maybe our sister's are seeing the light?
Hope so!1 Much Love & here's to Light! Margeaux
I'm kind of curious. How is it that you found out what hospital your friend is staying in? If you've written that her husband is very private about this matter, this is understandable. I realize you care, however I don't think a hospital is going to release this kind of information to you, for obvious legal reasons. Again, it's good to care for our friends, but it is a rather sticky situation when the friend is in denial, possibly the husband may be too. But have you thought of the fact that maybe they're trying to deal with this issue and just want some privacy?
Margeaux
Good news that your health is super! I laughed at Senior's Trick or Treat! I haven't had a bone density test done, still taking prempro so I assume I am protected, but I should take calcium too.
I hope you hear something from your friend soon. Take care!!
Oh, there was a Senior Wellness fair near by on Saturday. Wow, amazing vendors and medical tests being done for free...I had the following: bone density, blood pressure, cholesteral, sugar (diabetes), stroke assessment, and I'm great in all areas except for my bone density. Ykes, I'm a -2.6 so that put me in the High category for breaking bones! But other than that, I'm in super health! Had a great time and left with a bundle of free stuff. Made me think it was a Senior's Trick or Treat! :). Thanks in advance. BonnieW
Yankeuren – It’s too bad that siblings who make much more than us – refuse to help us. You should hope really hard – what goes around comes around. Wouldn’t it be great that instead of him dying instantly, he will lose his wealth, and see how long these girlfriends last. And then on top of that, be diagnosed with Alz. Let’s see how he handles that without any extra cash for a fancy nursing home. I’d much prefer that our siblings learn what’s it like that WE went through.
Momlife – you have it so hard. As for the kids, my sis just went thru the terrible teenage years with her 2 daughters. I kept telling her not to Trust them. Doesn’t she remember when we were teens? Nope, she said that they have open communications and she trusts them. I told her that they are teens, and will pretend to be with their friends – but instead will be with their boyfriends. She said that they don’t have boyfriends. Needless to say, both girls got pregnant. Yep, they don’t have boyfriends…..I don’t know how to get them motivated. My sis struggled with her 2 teen girls and teen stepson. It was a very difficult time for her and hubby.
I must admit that what I muttered was justified in the situation. I chuckle to myself as well but try to keep it to myself in case it bites me in the butt. Today was the first day that I worked since the incident happened with the store manager working too. He never said a word to me about it. Interestingly enough, another customer went off on a courtesy clerk today. The poor girl accidentally squished the customers cupcakes when bagging them. The customer said, "You f**king idiot!" the checker told the customer, "We can take it to the bakery for them to fix it." The customer said no!..."Make her F***king pay for it, the F***king idiot!" The young girl was in tears and left to the bathroom for quite sometime. The store manager walked out with the customer and once outside, he told her not to come back. Customers tend to have the attitude we as employees must be PERFECT. When we make a mistake, there is no rational thinking on their part...they only see a discount or getting it free so they make a big scene about it. It is a shame that our society has this attitude, but KUDOS to our store manager for sticking up for his employees and that we do not have to accept abuse from a customer just to make a sale. A few days ago, one of the head clerks asked me where I lived because he sees me drive by his house on such and such streets. I said Oh, I go that way during my lunch break to see my mom. Today when I was driving back from my mom's I saw him. He waved and I stopped and we talked a few minutes. He said I heard about what happened with you and a customer the other night, I said oh yes, she was something else and that the manager did not say a word to me about it. He said the word around the store is she came in with an attitude so he wouldn't say anything in that case. It is great to have the support of my co-workers and management in this case, however, I do need to watch my mouth, Lol...in the future!!
Without rambling on too much longer, I am off tomorrow, Yay!!! This is the first part of a weekend I have had off since we came back from Idaho in October. We are going to go for a drive, take some pics and just enjoy the time together since hubby doesn't have to work either. I told sis she will need to keep in touch with mom during the day and I will be there as usual to give her the medicine.Hugs to you Margeux!!
Welcome to our thread cinderbard!! We hope you come back and share some more. Hugs to you!!
Cmag~From what I understand about disability, this interview is you have to go through is standard procedure. I am sure you have nothing to worry about, but it is frustrating just the same. Keep us posted, we are all thinking and praying for you. Hugs!!
I tend to be rambling, so I hope it has helped someone, it has me. Just to be able to write it down and I will try not to cry over things that I really can't change. We do know that a nursing home is not the place for her, after her stay in the hospital and two weeks there she was worse then before.
She began telling about the ongoing tension she feels with our sister in law.
I'd posted about the competition my sister and SIL have about each of their two daughters. First of all both my sister and SIL are difficult people.
During the holidays they had some unkind behaviors by the youngest daughter's thwarted against one another's families. My sister's daughter didn't say, hello to this SIL, my brother (her uncle) and the two daughters when they arrived at my sister's place. Then my brother's and SIL's youngest girl dissed my other niece's 1 yr. old baby boy. He tried giving that girl a toy of his, and she just stared at him,
choosing not to react. All these nieces are 18 yrs. and older.
So my sister was telling me that in addition to all of this, that our SIL gave my sister's youngest daughter a $25.00 gift certificate for a hamburger food chain for Christmas.
I just found this out last week. My sister's daughter is obese. So my sister and the daughter of course took offense to this gesture by my SIL. My SIL, and one of her own daughter's is obese also. Anyway, I thought this very weird behavior on my SIL's part. But, I must also say, that my sister's daughter has been targeted before, and I realize it is unkind for others to either poke fun, or point out a weight issue to anyone. But I'm always wondering why it is my sister doesn't address the issue of the weight thing too. I say this, because my niece's dad's side of the family has a lot of diabetes. Anyway, it's very hard for me to bring up this issue with my sister. I hear that they would be offended, but I think they should focus on the weight issue.
One of the reasons that my sister was talking about my SIL, is t he fact that our brother unfortunately lost his job of 29 yrs as a rep for one of the most popular beverage companies in the US. We were all quite sad for my brother, as we as most people think when one has this kind of a job, thought he'd be retiring from this company. Over 3,300 employees were let go. We worried morally, and of course financially what it could do to my brother. Well, he seems to be maintaining a positive outlook, no matter what. I sure hope so.
No matter what, I always wish the best for my brother, SIL and my neices.
Margeaux
I forgot to comment about what you said about my neighbor and she resenting other people in relationships. I don't know whether that is the case with her. She was in a very abusive relationship with her last husband, many years ago. It was at a time unfortunately when woman didn't know, or have resources to complain about it. I know some of this attitude may come from this experience.
She just turned 76, the other day. Some of her other friends, who I've met, are either in relationships or have just lost their husbands. There's one friend who as I said just lost her husband less than 2 years ago. When she speaks of this situation, my neighbor has the, "Get over it attitude." I had to explain to her, that it's not quite that simple to do; the grieving. I so don't like it when people talk this way about others. Plus, she really scoffs at this friends caregiver role with her husband.
In the time that I've become friends with her, (8 years), she's never dated, or mentioned being in situations where she could possibly meet any men. In this regard, it's basically always negative talk. She also has a friend who is 82, who is quite amazing. She has a boyfriend, and seems to be very interested in keeping this part of her life alive. When she's made negative remarks about that, I've responded with, "I think it is great that she feels motivated still at her age, to have this interest." So you see, she's negative! I'd heard some of this talk before.
But when she decided to comment on me and my husband, well I just thought this a bit much!
I did go over on Thursday, to wish her a Happy Birthday. I've been quite busy this week and hadn't gone to get her a gift. I'll do that today. I must admit, that I was still with some residual energy, from that day she annoyed me, especially given the fact I'd taken her to 3 doctor's appts., and made food for her several times since she was not supposed to stand on those legs she'd had the procedures done to.
My goodness, could it occur to the pea brain, that whatever she's thinking about the fact that I do make dinner for my husband, that some of we who care about people, isn't to be mocked. How lucky are they, who benefit from this, too!
The day I was wishing her a Happy Birthday, she had a friend there. They were drinking a non-alcoholic drink. But she sat there and tried to criticize the other friend who also took her to an appointment, claiming she couldn't find her car in the parking lot, etc. I politely said that the parking lot in the medical bldg.is confusing, with lack of clear signs where not to park. Anyway, I think this a clear case, of she not having any support from her own family. Then she decides to dump on the people who help her out. There's lack of appreciation going on here. So my game is changing a bit with her. I do still like her and all of that, but I'm creating a bit of distance. The emotional detachment. Boy, hadn't said that in a long time.
Wow, your story about this customer. What a horrible customer that one is!
It made me laugh, what you muttered! HAAH! Under those circumstances I may have muttered the same thing, Sharynmarie. I know maybe this isn't the best thing to say to you! But you know I'm being biased here! Well, I'd have to think that under these circumstances your management would have to be absolutely crazy to think in any way that it was your fault. Try not to worry too much about it, especially if your co-workers are sticking up for you. No, and I've worked customer service, "The customer is not always right!" Do they have one of those, "We reserve the right to refuse service to anyone signs up?" O.K. going for my second cup of Joe! Your post did make me laugh, visualizing the whole scene.
Margeaux