Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
envision, I didn't learn boundaries either growing up with a narcissistic mom.
Thus, in the past it was easy for various people to use me up until I got angry and said "I want my life back, but I don't know what that means." Ever since, the end of 2002, I've been learning about placing boundaries with people so they will know what I will and what I will not tolerate in how they treat me.
I'm sorry that you didn't learn boundaries as a child either. I'm not a therapist, but I am sure one would be able to help you know where to start setting boundaries plus have some concrete consequences for when they get broken. From an earlier post, it sounds like you feel like you have to walk on eggshells around your dad, your son and your husband. That is no way to live.
That is a big step, for your wife to have graduated to a cane, no pun intended.
I'm so happy for you and her, Cmagnum. Well, given previous posts about your step dad, I hope you are not taking his calls about having your mom come home there w/he and the helper seriously. But this and I'm sure the calls from your mom thinking she is coming home, still however must be difficult to hear too.
Sharynmarie made a good suggestion. They are in my thoughts! Much Love & Light! Margeaux
I have learned that the more we cater to people, especially when you are in a dynamics with you being a woman, if they are the high maintenance types, you must start to set some limits with them. When all people do is expect from you, and continue to demand more, sure it is not fair. Maybe you have to really start to take into account the boundaries you could set up with all of these men in your life.
I have a sister who is in charge of our mom, and although they have paid caregivers, she lives w/her, so picks up the slack when they aren't there.
She still has a grown daughter who is now 23 living there w/her. This daughter isn't that helpful, nor accomodating. When my sister has complained to me about issues especially about the daughter, I know at the root of it is the fact that mommy still does too much for her, and I don't know why because this girl has shown over and over again her lack of consideration and being very ungrateful.
Demands were made of me all the time during my childhood by my parents because I was the eldest of their children. But when I was a young adult, I finally realized I was going to have to set very strong limits, as to what I was going to involve myself with and do for them, or I would never have my own life. I am aware, that when it comes to our husbands, this can be a stickier area.
Now I'm going to kind of tell on my husband, whom I love, I might add.
But e.g., I like to cook, because I place an importance on our nutrition.
So of course, I admit, I kind of spoiled him in that area. But when we are strapped for time, and he's wanted me to make some fancier dinner, I started to become very frustrated, and somewhat annoyed at this. So now, I take into consideration what else is going on, and make a less time consuming menu. It's still good, just maybe not something as tantalizing for him. This is one way I've put my foot down in this area. I have somewhat had to take on an attitude, of "well, if you don't like it, you can get into the kitchen and cook for us tonight, or take me out!"
Please try to find a way to work around the demanding people in your life,
because if you don't, they'll use you all up. I'm doing that more and more, and it's really also about knowing who these people are, but not allowing them to manipulate us. Much Love & Light! Margeaux
As to your question about how you can lose some pounds, if I may ask what is your diet like? I have a friend, who recently had some very high blood pressure reads. I was searching the internet for ways to help her, since she was very reluctant to be on the medications for it. In my searches I read over and over
again, there's plenty of information suggesting people w/HPB,
who are overweight, would lower it by losing some weight.
The usual advice about losing weight, of course is to cut out the fatty foods.
If your diet consists of high fat like meats, cheese then maybe you could limit some of that. HPB diets will usually suggest you eat leaner cuts, or chicken (not fried, and take the skin off), and fish. My husband loves meat. I can eat it, but not as much a fan as he. Last night I made some hamburgers. I cleaned up the kitchen, but not the pan I cooked the meat in. Today, I looked at that pan, and I couldn't believe how much fat had hardened in there. Gross!! I limit some of this also, because my husband has high cholesterol. I prefer to buy something such as ground turkey, but he prefers the beef. I need to look at fat content next time we buy it.
There's plenty of information about this on the internet.
Of course, snacking usually for many people consists of the junk items, such as chips, candy, ice cream-which is very fattening, well, you get the idea, oh and not to leave out the drinks such as Coke, and similar drinks.
I have a theory that many people are overweight because they're somewhat mal-nutritioned. One keeps eating things that the body really does not need, isn't satiated, and you feel hungry. This just ends up adding more pounds.
I really believe that someone with HPB needs to exercise. This in conjunction w/proper diet will help you shed the pounds.
As Sharynmarie stated, take small steps, but take them! Much Love & Light!
Margeaux
I guess the regret about our family circumstances can be for different reasons.
I know this is why I was so fed up w/the Christmas disaster a couple weeks ago,
because it takes some effort on my part, I'm sure anybodies to get some gifts together for my great nieces and nephews (they now the children) basically the main gifts I gave this year because they're kids. I'm not close to any of their parents, not in the real sense, as in we keep in touch, we call each other, etc.
Then because of turmoil caused and fan the lames so to say between them, I get to hear about it too much from my sister. Yes, I do agree we can become regretful for the way relationships are. Sometimes, we have no control over that either. The best anyone can do, is to acknowledge this fact, then distance oneself.
You hit on something here too Emjo, the fact that you realize things have changed for you in the last 5 yrs. Many times when I've seen the different things my sister still attempts to do, not only w/the care of my mom, but also all the other things, I do get concerned about her health, and whether she's overdoing it.
Let's face it, no one is getting younger, and we have to bear this fact in mind.
Sometimes, I think it would be wiser to not play and replay that negative dialogue in our heads about our dear mothers, fathers, family, friends. whomever it is that you feel is either pushing our buttons, or being draining of our energies. We really need to have some on reserve for ourselves. O.K., Emjo realizing this is a big step! Much Love & Light! Margeaux
It has been a busy two days off work taking care of things with my mom. I have thought about using some of my sick leave for selfish time off and not letting my sister know I am off work. I don't know if my dr. would go along with it by authorizing time off for being sick. I should call the union to see what guidelines are for using it. I could use a week off just to take care of things here at home and some down time to take some photos .I can dream!! I am pooped today, we got a new comforter set and sheets for the master bedroom and OMgosh, rotating the mattress by myself did my lower back in. I love the colors, the sheets are a dark red and the comforter is a camel brown. The sheets match the curtains and a silk flower arrangement I put together. Sweet dreams of us tonight and thermacare wraps for my lower back!! Hugs to everyone!!
Cmag, I'm glad that your wife is slowly but surely improving. As for your mom, 4 yrs! of her still constantly asking to leave the NH...Too bad step-dad and his helper can't "borrow" her for a month (requirement that they fill out the month of her being with them). They will learn the hard way that she needs to be in NH.
Thank you for all you love and support--big hugs for all
My wife went to PT today and learned she is now ready to use a cane! Yeah, no more walker. This long journey of getting her fully mobile again is about over.
Quiet day today,
(((((sharyn))))) - those feelings do creep in - but people who have not had to deal with personality disorder/narcissism don't have a clue about our situations. I have the same regrets as you do - that family relationships were and are as they are. I am starting to regret that I did not draw firmer boundaries sooner, that I put up with as much as I did, that I got sucked in as much as I did, and did not protect myself more. This is very different from the regrets a person might have who has healthy family relationships. I don't think I will regret not seeing more of her, as seeing more of her invites abuse. It is so different from a normal family. Sounds like you are the scapegoat - no fun, I know it well. You are doing all a person can do - please know that and have oeace about it.
book - will you have any regrets about not looking after yourself better? I would not be surorisewd if your siblings have few regrets. I think they are quite happy with their choices, and that you do the work. they do not have your conscience.
MyWitsEnd - I like your suggestion for sharyn to take a break, if she can, but agree it is better to stay in the house - I am sorry that your MIL rejected assisted living. I hate the black cloud but agree with austin that it shouldn't be only her choice. caregiving is very hard on people.
austi -you are so right - we do the best we can with these difficult people. -and that is all we can do.
Things have changed for me in the past 5 years. I just cannot give/put up with what I used to. The stress is harder on me and a point has come where I have to pay attention to that and prtect myself more. Mother is now saying that she understands that I can't help her because I have Gary and a life with him. She has conveniently fogotten that Gary and I dealt with all her belongings when she moved out of her apartment. He is most willing to be helpful but she has rejected him. But is makes a good story for anyone who will listen, and she can play the "poor me" role.
margeaux -I know the feeling of not being related. I am so different to my mum and my sis. We have been brain washed to feel guilty. Sounds like you are doing a good job of detaching. Getting rid of emotional residue is important in keeping ourselves well.
sharyn - interesting that your bro used to say you were adopted
Thinking of you all - alabama, hollis, riz -what is happening with your bro, cmag - my memory is not good tonight - everyone -wishing you a good evening. ♥, hugs and prayers Joan
I am not angry at Stacey for talking to me yesterday because I know it came from her heart and her Christian beliefs that "In Christ, we have no regrets." Like all of you, I know that God is with me every time I am around my mother because it is not my power that gives me the patience, compassion, and energy to be there for her. Like all of you, because of our family dynamics, our mental and emotional and physical well being is very important if we are to be of any use to our parents, spouses, children and grandchildren and even our employers. I have peace with all this. Margeaux, I will look up Gary Craig and EFT, thank you!! Hugs to you and everyone find peace in your heart, take care of your health!!
If I may suggest for you to look up a technique started by a man named Gary Craig, called EFT. This stands for the Emotional Freedom Technique.
I use this to clear my body of some of the emotional residue. It works for me.
Much Love, Margeaux
Thank you for asking about my family.
I'm doing much better from that fiasco over at sister's and mothers.
I have not been calling her much, because I got really bummed out to hear about the last dosage of all the back biting and refusal of everyone to be kind to one another. Besides, for me Christmas is not all that. I think people should act humane, everyday of the year, not just during some season.
Sometimes I feel as if I'm not related to these people.
When I read the first sentence of the paragraph your manager, making the remark about "regrets," I realize that she is well intentioned, but sometimes, the selection of the words people choose gives away some of their projection about a situation I'm sure you wish to keep private, especially at work. You're doing a lot, and are managing it the best way you can. Regarding your sick leave, and insurance, this is quite understandable.
The manager for however well intentioned she was to say this to you, the part about making sure you not put your job over your mom's care, etc., I believe she's crossed a boundary here too.
Well, please try not to allow other people to push your buttons.
It took me a very long time to disengage from guilt about the fact that I wasn't doing yet another task, taking on a responsibility that really my parents should have been attending. But at some point, I came to realize that some of it was my own self imposed guilt, just because I was so brainwashed and accustomed to this.
Anyway, Sharynmarie, you do what you can. But even as one must be careful to take care of their physical health, I really feel it important to take care of the mental health aspect, and how we look at the caregiving situation also.
Try not to doubt yourself, you are valued by us!
Much Love & Light! Margeaux
I'm very sorry about the loss of your friend.
Peace to your friend. Hugs to you, Much Love, Margeaux
Uhm...I didn't think your MIL would have wanted to move to assisted living. From the different threads I read here, they usually fight against it with teeth and nail. So many stories on this.