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My mom did a good job putting back. Her home was paid for and she had a retirement also. Now, the money is going, going, going. I can't believe how FAST it has gone. Last summer is when we had to start using it for care. 24 hours a day at $10-$12 an hour for 5 months, well, you know. It was a hunka chunka change! Now she is in AL and I could live off of what is going out. I know that after about 5-8 years we will be facing what to do next. It is really sad in my state that Medicaid will NOT pay for AL. They will ONLY pay for nursing home. It would save so much more if they would pay for AL, but they will not and my mom will be forced to move AGAIN. More anxiety that is not necessary for her. I can't even make my mind go there right now. We are struggling with her changing addresses again now, She will probably be good and settled when we will have to up root her one more time. Then I will get to hear how once again, that I don't want her at my home. I am with you about mo money= mo problems, because I had to realize that the money wasn't worth it for her to live in my home and make us miserable with her. I could have very well built or bought a home after we sold hers to accommodate her and all of us totally 5 people. Her own room and bathroom in another corner of the house. I realized it would NOT be worth the anguish everyday. Once or twice a week is more than enough. I have friends and family tell me I need to start getting the money in other accounts (of course still using it to care for her) then in time Medicaid can kick in and she could still have a little bit left for things she may need that Medicaid won't pay for. This is where I feel guilty again, the money is hers and I am having a hard time putting my name on it. I am wishing now, I did it when we first got her diagnosis 3 years ago. 3 years would have passed and only two more to go. I did NOT do it though. like my friend and aunt told me, if I don't do something now, I will be sitting here in 5 years saying the same thing. It is sad that they work, put back and the state won't help until they are destitute.
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That's good advice, Jeweltone, re-moving funds when there's still time, even if you don't feel comfortable. For maybe the last 6 months or so, I've been moving some of my mother's bank $ to an investment account, to prevent her from withdrawing too much at one time for no good reason, or heaven forbid, if someone got access to her accounts, it would be bad. I've been conservative about transferring the funds, so as not to upset her, but she did something else last week at the bank that alarmed me, and so I quickly moved more over to the investment fund.
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Your Mom may be suffering from depression. We forget that changes in the neural system associated with dementia include changes in the neurotransmitters that help us feel good (or at least OK). You may want to ask her physician if she has been evaluated for depression and if there is a medication to help.
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Hi, people have been telling me how to protect my parents for at least 5 years. Both are alive and need help (pushing 90). Knowing what to do and doing it if your parents will not co-oporate are two differnet things. Dad is now blocking Mom's care. Well long story. Guess they become negitive when they start to lose it. They get nasty. I am lost.
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126cher i know how you feel mum has gotten worse and refuses to see doc i told her today that she has to get her bloods done sometime next week she said "why" i said the doc ordered them her reply "well fck him im not going". what do you do? nasty??? mum never used language like this before she does nothing shes told like a bold child? its tough i never listen to anyones advice unless theyve been here what the hell do people know about how stubborn they can get!
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I wanted to transfer some of her funds after she sold her house, but since I am not the POA power of Attorney, my brother is I couldn't do it since he was against it. I wanted her to have some money left if she needed it for things like dentures etc. which she will be getting soon. Like Jeweltone said the money goes real fast! I know she is well taken care of so it is worth the peace of mind to know that, but I still think that what AL charge is highway robbery!
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You will definitely notice when reasoning ability is going fast. That's when your previously able minded parent turns into a rather rotten preschooler. And all you can do is hogtie them and haul them to the doctor. Yes, you have to take charge and do things against their will.

If you get physical temper-tantrum like responses, then you have to start being creative. It's not devious, it's creative. Safety is prime directive number 1. When a person loses their reasoning, they are no longer safe.

This is when you schedule a neuro-psych evaluation, and do what you have to do, to get mom/dad there. Bribe, lie, cajole. Say they have to go in to get government benefits. Or to get medical proof they are OK, so everybody will leave them alone! "Yes mom, I know you're totally fine. We need the doctor to sign a paper saying that and he has to do some tests first. This will really put the whole thing to rest for good! Then we'll stop & get a treat at the bakery."

This takes guts, grit, and more determination than anybody ever expects. It's tougher than tough. So many parts of this feel wrong, backwards, and upside down. This is a modern phenomenon because people didn't live this long in the past, and when they got sick, it was something that took them pretty fast.

Hang tough. Do research on this site. Ask questions. Come vent.
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My mother is at that stage now where you can't reason with her. She will also whine about things until she gets what she wants like a preschooler. It's the complaining and negativity that really gets to me too. I get so stressed out every time I see her. It isn't easy at all. I like this website because I can see that I am not the only one going through this, and everyone has good advice.
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MaineMom - I wouldn't bring mom back to my house for $260 a day! I think it would cost me more than that to replicate the staffing and services there 24/7. And my house is not built for fall-prone people, or upholstered for leaky/messy people. I don't feel like I am able or trained to replace all the special skills concentrated on the ward mom lives on. If her meds need adjusting, they have a hotline to the doc, and it just gets done. If she went into an emergency, the medical people are already there.

That check is hard to write out every month, that's for sure, but I appreciate what she's getting for it and that I get to keep my job, family, and home life. I will say that I wish more of what we pay went directly to staff vs. administration!
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Amen to that!
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That's how I feel. No money in the world is worth bringing my mom to my house. That is why I write the same check every month, for peace..At least from her every minute. I would love to write it to myself and my family could live comfortable, but I will gladly write it to AL to get peace.

Went there today because I had made an appt for the other lady to do her hair. I went because my mom asked me to being the first time she let her do her hair. She even complained to the lady about how she didn't like the AL place. Uggh! I just sit there and rolled my eyes to the girl doing her hair. After getting her hair done, we go back to her room and my mom said, "she looks like a witch". Oh my gosh!! I said, "that's not nice", "why would you say something like that?" She said, "you don't think I am nice anyway." No, she is so right, I think she is nasty, mean, hateful and very ungrateful. I did like you have told me, I changed the subject. I said, "would you like me to do your nails?" she said ok. We did her nails and went to the patio. Each time she would complain or say something I didn't like, I changed the subject. I am afraid I am going to run out of subjects. hahaha! :0. I stayed about two hours and she told me I didn't ever stay long that I always had something else to do. I agreed with her for once and didn't make excuses. I just told her when you have kids and a job, it is the way it is. I was proud I just went with it.

I wish I didn't have POA and someone else did. I don't like being in charge of all this. I went to the bank last month with the notion I was going to move some money and I chickened out. I just couldn't do it. My worries are that she will want a statement then she will prove to herself I am cheating her. --even though I am not, she thinks I am. I just couldn't do it. I know it is what I need to do though. The government, the AL, and the nursing home are going to get everything if I don't act quick.
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Hi Jeweltone--I am aso here on a Saturday, but my mom calls me. Everyday, probably 7-10 times. I go back and forth to her home during the day, especially in the summer when I am not working. I would love to have some peace of mind--I struggle with not making her mood my I mood, and I have continual anxiety. I am working on it though. I know I am filled with self-pity, but it is what it is. I have been reading a good book,"will I ever be good enough," by Karyl McBride. It is aobut healing the daughters of narcisstic mothers. It has been helpful and enlightening, but every day is a struggle. I am working so hard to be grateful for all the wonderful people and things in my life, but I have been dealing with my mother issues for about 55 years--I am 61 now.

I think it is great to have this virtual support group. I am grateful for it and all those who have responded to me. I do love my mother but her negativity and her level of neediness are difficult to manage for me. Someone else might do a much better job of not dwelling on things, but I do, and I have this awful anxiety. I have a wonderful husband and a good life, but this weighs on me morning, noon, and night--all the time. I think I am the one who needs to change, but it is so hard!
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Hi Njny. We're the same age and same issues. Can you meditate, take a Tai Chi or Yoga class, get counseling even once a week. I just discovered a new and wonderful senior center where I can take such classes. Find resources to help you change. No one else can come into your head and operate your brain. I know my mother tries hard to control me, but I am now refusing for her to INFLUENCE my mind and behaviors. When it happens and I find myself obsessing over her, I pray, "Lord, help me be free. Help me control my own mind and life." Then make an affirmation like, "I am in control of my own mind and life. I am free, I am peace."
YES, You can do it!!! No excuses. Self pity for a few minutes or an hour might be ok for venting. Come here to vent. We'll all cheer ya on. Then cut it off and be determined to control your emotions, dear yogi. God made you a free person.
I don't know why we have this darned karma but we still can rise above it.
Prayers for your recovery of your higher Self.
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Ps: I am finding the more able I am to release and detach from anger and resentment the better my relationship is with Mom. She is improving but I know I can't totally trust her. That's fine. I know can be in control of how much I am going to give to this person. Yay! best wishes with all my sister heart.
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I had the same problem with my wife. The doctor prescribed an inexpensive generic anti-depressant, excitalopram, and within a couple of days she became pleasant, upbeat, and cooperative. It's been four months now, and her new mood is still holding. I haven't even told her she's taking it; she wouldn't remember anyway.
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Hi I haven't posted for a while but I'd just like to say that my grandfather is so much better now and has been for about the past month and a half. He only complains about things that are genuinely troubling him ( such as bunions on his feet) and has made the effort to get out and about. I am still visiting regularly but the visits are a pleasure now. I do worry that as he's becoming more positive he's getting a bit frailer though - it's like his complaining gave him a feistiness and zest for life. My parents have recently had some operations too.
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Jeweltone - don't worry about repeating yourself with mom's distractions. She's not worried about it. :-D If she says something, just react like "Oh - I didn't notice" and move on down the road. This is not for a grade, this is not an audition. You aren't on a TV reality show competing for a golden walker. (Wouldn't it be interesting to have a Big Brother: ALZ Edition on tv or is it just me?)

Whatever you do is successful if it gets you out of a visit without being traumatized. It's a learn as you go process and some techniques will work and then they won't. You just do what you can and call it good enough!

There's no bonus points or awards for perfect caregiving anyway. There's no caregiver Olympics because every day caregiving is like running a marathon. What happened yesterday doesn't matter today and neither does tomorrow!

When mom was in a wheel chair, when she would start in on me, I would just randomly change whatever direction I was pushing her in. I'd suddenly turn around and go the other way in the hall (not sharply, to give her whiplash, just suddenly). This would be enough to derail the negative ranting. Or "hey - what's over here? I haven't been over here before..." I mean this is not like trained PhD level stuff here. It's desperation from one moment to the next, but sometimes it's successful. You will surprise yourself with what you can come up with once you let go of expectations for yourself and your mom.

Maybe that's how I get through it. I have no expectations for anybody during a visit. It's one moment at a time. Sometimes there's talking. Sometimes there's crabbing and complaining. Sometimes there's awkward silence. Whatever. When it's time to go, I go. If I get through it without either one of us needing to be sprayed down with cold water and a valium dart to the haunches, then that's fine with me.

Some days you're the Road Runner. Some days you're the Coyote. :-D
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Sandwich: That's funny!! What was interesting was yesterday she was out of medicine--(Well, I didn't pay close attention how close to out she was) so I called the doctor to get a refill. I waited and waited for it to get the the pharmacy. Again, spending the day for HER. At last, the pharmacy calls at 5:30 and the meds are ready. I had dinner on the stove but I wasn't waiting or wasting another day to go to her. I literally yelled for my daughter to come watch the dinner while I drove as fast as I could to the pharmacy and then to her apartment to take her pills to her and a blanket from her storage she had asked for. When I got there it was dinner time for her, you will NEVER guess where she was. NOT in her room (where she tells me she stays ALL the time), but upstairs eating with another lady. Oh yes she was!! --even in her pajamas, she REFUSES to get her clothes on-that is another BIG change with my mom. I think it is great she was out, but to her she explained herself over and over to me why she was there.--(I had cabin fever and needed to get out of the room) SOOO what! I am glad you are out. She got caught socializing when she tells me she is miserable.. Now, that my friend, was PERFECT timing! I found out through one of the staff that the reason she wanted the blanket was because she sits out on the porch with some other ladies in the evening and it gets cool and the other lady brings a blanket. Ha Ha! I got in the car and thought to myself--She IS okay! I have enjoyed today so much not worrying about how guilty she makes me feel. She tried to get me to stay yesterday and I just told her I had dinner on the stove and needed to go. Yay me. I am getting through the same way, day by day. Tomorrow? Who know? but today I am enjoying the moment. I teach and school starts back soon..smh :-( but it gives me an excuse. I am at work, sorry.

I like the roadrunner and coyote... and you are so right, it doesn't bother her, because she wasn't sitting around waiting for me to come with medicine, she was out enjoying herself. I am hoping to start doing the same (even though she thinks I do it already)
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Jeweltone,
When Mom broke her hip she had to go to AL for a Month. She also told my husband and me that she hated it. We went to see her one night and caught her playing cards with a group and laughing. We did not even let her know that we were there. We went home happy. Next morning she called and asked where we were because she was so lonely. Staff tells us she only complains when we are there. Well, you get the idea. Good Night. Cheryl
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I do get the idea...My mom has been there for 4 months and she cries every time I go visit. She cries on the phone, "I hate it here", "Am I going to have to live here the rest of my life", on and on. Literally cries tears. It is heartbreaking to a point, but I realize it is best for her. She CANNOT live by herself. I know this very well, because we have tried it. When she tells me she wants to move back by herself, so many times I think, well, maybe she can because she is doing better--I have to remind myself she is doing better ONLY because of where she is. Convincing her of this will NEVER happen. I always cringe when I have to call or visit. I am weak when it comes to other's feelings and she knows this.
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Jeweltone, I am worn down by my mother's negativity too. There are so many really good suggestions for helping those who WANT the help, who WANT to feel happier or healthier. But for those of us dealing with the perpetually miserable, the only solution I've found is to keep my distance, and when I have to deal with her, keep it SHORT. I mean, less than an hour, or even less than 30 minutes sometimes. And no more weekly phone calls -- I call maybe once every two weeks, and those calls are no more than 5-10 minutes tops. As she's getting worse, I've been lucky to be able to get a little more care for her (but not AL yet, she won't go). I thought that the natural progression of things would mean that I'd be more personally involved with her. I'm more involved in overseeing her day to day stuff and keeping in touch with the people who are involved with her. But I'm dealing face-to-face with her a little less, which is good, because she seems to be getting more and more negative. Completely unwilling to see any bright side of anything, and I am not good at being a constant cheerleader.
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Hi Friends--I am also worn out from my mother's negativity, but I think at least part of it is depression. She has suffered from depression for as long as I can remember. I think her depression has led to my having pretty steady anxiety. I have always felt that it was up to me to make her happy, and now that she is older it seems worse, but it was bad before. My dad often turned to me to help her emotionally--I don't know how he did it, really. I am constantly trying to balance my job as a principal, being a wife, hoping to see my children and grandchildren who live far away, etc. I get so nervous when I leave my mother for even a brief vacation, even when I have people checking on her. I am reading all of these posts, and I think for the most part, everyone is trying very hard to do the right thing but still take care of themselves. I believe we must take care of ourselves, even with the guild-ridden feelings that come along for the ride. It. Is just so hard--every day. I am inspired by the posts I am reading and grateful for the opportunity to share. The posts have helped me realize that my mother is quite healthy overall, and I have been tending to her emotional, not-so-much physical, needs, and for some reason that was not all that apparent to me before! All of your contributions are helping me to reflect and to try to see things from a variety of perspectives. I hope I can be helpful to some of you down the road. I hope we all take a step in caring for ourselves as we care for our parents. There has to be a balance--how to find it is the biggest challenge for me!
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My mother says the same thing, "Am I going to have to live here for the rest of my life?" She lives in a very nice AL and there is no way she can live on her own either. She should feel lucky that she can live there. I mean everything is done for you: meals, laundry, medication administered, room cleaned etc. I know she. Is lonely because she wants to be with someone all the time. I spend a lot of time with her and take her to all her doctors appt. and shopping, out to eat etc. She will never know how bad I feel to see her this way ( living with dementia and getting worse all the time), walking around in a fog most of the time, and lacking the understanding of so many things. Today I asked her to sign a check and she wrote it on the long side of the check on the back instead of on the line. Everyday something will happen that I would never expect that she wouldn't know. We all need to be so thankful for our healthy minds and bodies while we can because someday this could be us. I pray this doesn't happen to me or my husband not only for us but also for our two children. I hope they won't have to take care of us like that because it is so draining, and emotionally exhausting. I don't ever want to be a burden to them.
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I am so glad the posts here are helpful. They have helped me more than I can express. Getting through this difficult. I called to check on my mom tonight and she started her misery again.--even after I saw here eating with someone on Monday and laughing at that. When I am there she is miss grumpy and sour faced. When I told her I just got in from work, --sometimes I tell her I have been working so she doesnt question me...she said "well, it could be worse, you could be like me, nothing to do." I replied by saying, yes, either way is bad, mom. Then a minute later she said, same ole same ole here. I replied, yes, when we are working and raising a family it is same ole same ole, and when we are retired and nothing to do it is same ole same ole. No matter where we are in our lives, it is a repetition. She didn't say anything, it was that uncomfortable silence. I said, I will let you go, just wanted to call you a minute. She said with a mad voice, well, ok then. I hung up and thought, I am moving forward and not staying stuck in your misery. I am going to enjoy my night whether she does or not. I am like looloo, I am tired of being a cheerleader. I am NOT responsible for her happiness! There, I said it. I am NOT responsible for her happiness. I know she looks to me for that, but it is not my job to make her happy, it is my job to make sure she is well taken care of physically. I have, ALL my life, taken care of her emotional health even at the expense of mine and my family. When she wanted to do something that I didn't I did it anyway because I knew she would make me miserable if I didn't. I was miserable anyway, so I should have done what made ME happy. It is the time NOW to make myself and my family happy. Wow, listen to me. I sound like I know what I am doing. If I keep telling myself, and each one of YOU these things, maybe we will practice what we preach. Nite all!!
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Here we are, another Sunday. Well, today, I did it different. I did NOT go to my mom's. I went to the movies with friends and then to dinner later that evening with our families. I had a great time! Now, before you wonder how did you do that? No worries, the guilt was still there. I had to talk to myself very often and remind myself it was my day and I needed to enjoy the time away. I did and tried very hard not to feel guilty. Especially because I lied to her about what I was doing today. That in itself made the guilt worse. Now, do you think if I told her I was going to the movies with friends, she would have been like.."oh good, glad your getting to do something fun". Umm NO! So once again I took the doctors advice, the truth doesn't matter. I called her Saturday and told her what I was doing--the truth and I told her I would see her Monday. She wanted to know what I was doing today. Well, here it came. a big fat lie. That is ok, it IS okay. I did have to tell myself several times, it is okay to do something for your self. I warned everyone in the house NOT to answer the phone if she called and that way no one had to explain or lie to her. Luckily she did NOT call. She whined and groaned, "what will I do?, this isn't going to work, what about my pills?..on and on the guilt kept coming. The manipulation rolled as usual. I did her pills on Monday this past week, so I know she had enough pills. She wasn't going to snowball me this time. If you just listen, I mean really listen to what they are saying, you will realize it is all manipulation. Guilt and manipulation is what they do best. It seems even thought they may lose so many abilities, they do NOT lose the two things that keep us reeled in. Yes, I am dreading tomorrow (Monday) but I will suck it up, do her hair, fix her pills, and yes, listen to her complain and belly ache about how horrible her life is. So many times I wish I had left her in the county where she lived and put her in assisted living there. I would not be so close and wouldn't feel guilty because I am just down the road. To those of you struggling with what to do, hang in there. It WILL come to you. Just don't let it go away. Be brave enough to take that next step.
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Jewltone, I am so inspired and encouraged by your post!!! Good for you!!!! Yay!! So glad you had a good day Sunday with friends and family.
We are on similar paths in many ways. Learning to establish boundaries, and claim a little more distance. Seeing clearly what the interactions with our mothers are all about. It's a real eye-opener for sure.
This weekend was an interesting time for me. More drama from my mother (over the phone on Friday afternoon), insisting we return her car to her. I didn't call her back. Any contact with her literally makes me sick to my stomach. I can't sleep, I can't concentrate at work. Her dementia aside, she's just toxic and bad news. So, I ignored her phone call, and decided to consider just not having any further contact unless/until I felt comfortable and confident that it was the right thing to do, in a practical way. If it was related to her safety, then ok. If I needed to contact her for some task that required it, then ok. Otherwise, NO contact.
Sooo...we sold her car on Saturday night. All proceeds will go into her account. Done deal. Thank goodness.
Her birthday is Wednesday, and I spent a good deal of thought on how to handle this as well. This year, 2014, is turning out to be a year of 'renouncing' a lot of things. And acknowledging birthdays will be one of those things. It was the first year my mother did not remember my birthday (in April), and it was not just a sign that she was declining further, but it was also liberating and a relief for me. Like one more string was being cut, and it actually felt good.
When my brother proved himself after that to be completely unreliable and only interested in the Bank of Mom, I decided not to pursue any contact w/him, to stop the Happy Birthday emails, and so on. There was no big blow up, because he's never around, and hardly never contacts me anyway. I just decided, no more.
And now, I will add my mother's birthday to the list. If she does happen to notice (odds are very slim), she will not remember later anyway.
And I am MUCH, MUCH better off, knowing that I'm doing the responsible thing for her, but keeping AWAY from her.
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Looloo this is a good step in the right direction. I was just about to ask about your mom's car. I am glad you had the courage to go through with it. I know she will be so worried about it, but not as worried as you are when she is out in it. Yes, her safety is all you need to be worrying about right now. It is NOT our job to make them happy, We canNOT change the situation they are in. That is where the guilt comes in too.

I can't tell you how many times I have dreaded holidays, birthdays, or any type of get together with my mom. It was always drama with her too. This past year she forgot my birthday, my son's, and my daughter's. She didn't even bring it up and neither did I. I was so happy. I have still brought up her birthday but I am hoping soon I won't have to. The only thing is where my mom is now in AL, they will probably do something for her as they have the other residents. That is okay though, I will just join in and not be responsible once more.

I will tell you this has been a long time coming for me. As I left the assisted living today from my visit, the director told me she was proud of how I am handling things (I went to school with her and she knows about the situation). She stated she felt I was starting to realize more and more about how to handle things. She also told me some things I should say to my mom, but I am not quiet there yet.

Good luck to you and I will keep posting--it helps me tremendously and hopefully it will give you and many others the strength to move forward as well. Here's to a good life ahead!!
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My weekly visit. As you know, I didn't go on my regular day because I took some much needed time for myself and some friends. Today was full of tears and more woe is me. My mom literally cried almost the entire time I was there. She was even talking about the nursing home experience she had two years ago for rehabilitation getting her strength back. She started telling me of how mean a nurse was to her--this was the first I heard of it. Maybe the memories are just now coming through. It was rough listening to her, but the crying kind of got on my nerves. I guess because it is always woe is me, what about me, look at me. I tried to just listen, but I guess all I was hearing was complaining again.

She got on a subject today that I do not like to talk about...money. Shew. Wish I didn't have to deal with the money. She is so afraid I am spending it or that someone is cheating her. Her mom died a few months ago and she keeps wanting to know when the house and stuff will be sold so she can get her part. I see it as selfish, but I do understand her worry about needing it to continue to live at the AL. I always, I mean all my life, had to walk around certain subjects with her. Now, it is about MONEY! I loathe the thought of it. I have shared with her what I spend--for her, and she always gets confused and the next time we talk about it, she comes up with a totally different amount or something. I have shown bank statements and that always causes her to be upset--so I stopped. Yes, it goes fast and she just doesn't understand. She also thinks back to when her money would draw 10% now interest rates are ridiculous, but she doesn't realize it is not the same. Therefore she thinks I am not being smart with her money. JEEZ! I wish I had someone to just hand it to and be done.

Besides all that, I was still able to leave when I wanted and didn't worry about what she thought or the words coming out of her mouth as I left. She also started about me not taking her home with me. I told her she could come and visit, but she would have to come back to the AL. She didn't like it one bit. I would have NEVER said that before, but like I stated, I am learning. In a way, I am afraid to bring her to my home, I am afraid it would be hard to get her back. My mom used to come visit and we would cookout and she would spend the day here prior to her getting sick. It has been since February 2012 since she was here. That was the last time she drove and the last time she looked like herself. The last three years we have known something was wrong, but the last two, showed us what it was.

I know she wishes things were different and so do I, but it is what it is now. The here and now is what we have to go on. Not yesterday, not last year and not tomorrow, but right now. Tomorrow is a new day if it is granted to us. Let us rejoice and be glad in it!!!
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Jeweltone, I have felt for a long time that the word, Dementia, Alzheimer's, and aging should be tied in with the word GUILT. There are so many that do nothing, some that do little and of course expect the most attention, and those of us that have taken on so very much, that we just are tired and sad. I am responding to your last post. I get it my dear. The sad reality is no matter how much we do as their memory goes away, so do the angry moments, the " you do not care or get it, and my mom's new word I am a b*tch increase.

The answer is in the truth. I say that knowing that when our lives are so invaded with this caregiving, in or out of the home, we know and those who care that we are just so aggrivated, tired and wish this loved one could just see how much we are giving, and giving/knowing that the reality they will not remember, and sadly get worse. Our job has to be at some point the advocate, not the child. I am not saying we do not stop visiting,doing or careing, yet we have to take care of our lives, health and if one has, which I do not families.

I love the word try,I realize how many times I have tried to get her invloved, help her to understand and hope she sees the light. The asnwer is she will not see how this hurts us, makes us cry and fear for thier well being. If, and say if we have done all we can do, from the outside, in your case,than it seems that just advocating is where you may need to be. I know you are saying " easy for you to say" yet, is not easy for me to say.

I have been doing this for 7 years,and given a lot of my life up to do so, I am near the point that I will hava to move into a memory care facility. I have been asked, when do I think this will happen, as I was asked the other day I just started to cry and say, when I am ready to give her to other's, and care for her from the outside walls. I am just not ready to let her go. Yet, when I do, I shall watch over her, and advocate.

This does not mean I will be happy, and I know she will not be happy at that point, I shall cry when I leave, and be tense when I arrive. I am human, and from what I gather so are you. I can say be strong,yet it sounds like you are trying your best.

Take Care, Jazmine!
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Reply to Jazmine1
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Dementia patients do get typically angry and resentful, I could imagine the fact that your family makes everything you do even more magnified to her. One small problem can seem like an argument worthy issue when in reality its not. find out what times she does this, my client gets like that around noon to four pm. If you find out the times its best to visit other times. Also her medication may need adjusting. Try not to argue with her just be silent or change the subject usually that keeps them calmer. What are the things she loves, or really enjoys? hobbies? what does she like talking about? focus on that and encourage her to talk about that. However it is expected with dementia for her to be irritable, the shifting of conversation can distract her and get her in a good mood for both of you. Keep her busy busy busy, have her clean make the bed so she wont get a chance to say anything argumentative. she will feel as though she is contributing to something great. Connect four , the game is good for people with dementia, easy enough and entertaining. Puzzles that are small can really keep her going and calm if she is the type to do puzzles. The key is to keep her mind going but in the right direction, positive rather than her nagging about things.
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